10 Essential Books All Alzheimer’s Caregivers Should Read

I think it’s important to note that each person’s experience with Alzheimer’s is unique, so caregivers may find different books more relevant based on their specific situations and needs.

5 Most Loved Books For Alzheimer’s Caregivers

1. “The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer’s Disease, Other Dementias, and Memory Loss” by Nancy L. Mace and Peter V. Rabins
   • Summary: This widely acclaimed book offers practical advice and emotional support for caregivers of Alzheimer’s patients. It covers various topics, from understanding the disease and managing challenging behaviors to providing adequate care and coping with the emotional impact on both the patient and the caregiver. The title reflects the around-the-clock demands of caregiving, emphasizing the challenges faced by families dealing with Alzheimer’s.
2. “Creating Moments of Joy: A Journal for Caregivers” by Jolene Brackey
   • Summary: In this interactive journal, Jolene Brackey provides a unique and uplifting perspective on caregiving. Focused on creating positive and joyful moments for both the caregiver and the Alzheimer’s patient, the book encourages readers to find joy in everyday activities and connections. Through anecdotes, practical suggestions, and thought-provoking questions, caregivers can enhance their interactions and create meaningful moments with their loved ones.
3. “Learning to Speak Alzheimer’s: A Groundbreaking Approach for Everyone Dealing with the Disease” by Joanne Koenig Coste
   • Summary: Joanne Koenig Coste, an expert in dementia care, shares her personal experiences and presents a groundbreaking approach to communicating with Alzheimer’s patients. The book focuses on connecting with individuals through a compassionate and empathetic understanding of their world. Caregivers will find practical tips on enhancing communication, improving the quality of life for both the patient and themselves, and adapting to the changing needs of someone with Alzheimer’s.
4. “Still Alice” by Lisa Genova
   • Summary: A fictional narrative that explores the life of Alice Howland, a linguistics professor diagnosed with early-onset Alzheimer’s disease. The novel delves into the personal and emotional aspects of living with Alzheimer’s, offering a poignant and realistic portrayal of the challenges faced by both individuals with the disease and their families.
5. “The Best Friends Approach To Alzheimer’s Care” by Viginia Bell and David Troxel
   • Summary: The authors, who are experts in dementia care, introduce the “Best Friends” philosophy, emphasizing the importance of empathy, understanding, and companionship in providing care for individuals with Alzheimer’s.

5 Other Important Resources

1. “Alzheimer’s Disease: What If There Was a Cure?” by Mary T. Newport
   • Summary: Dr. Mary Newport shares her personal journey with her husband’s Alzheimer’s diagnosis and her exploration of alternative treatments. She discusses the potential benefits of coconut oil and medium-chain triglycerides (MCTs) in managing Alzheimer’s symptoms. While controversial, the book provides an exciting perspective on potential dietary interventions for Alzheimer’s.
2. “Being Mortal: Medicine and What Matters in the End” by Atul Gawande
   • Summary: While not solely focused on Alzheimer’s, this book by Atul Gawande explores the broader issues of aging, illness, and end-of-life care. It provides valuable insights into the importance of quality of life, autonomy, and meaningful connections in the face of serious illness, including Alzheimer’s.
3. “Dementia Reimagined: Building a Life of Joy and Dignity from Beginning to End” by Tia Powell
   • Summary: Dr. Tia Powell explores the challenges and opportunities in caring for individuals with dementia. The book challenges traditional perspectives on dementia care and encourages a more holistic approach.
4. “Loving Someone Who Has Dementia” by Pauline Boss
   • Summary: Pauline Boss guides individuals in navigating the emotional complexities of caring for a loved one with dementia. The book addresses the ambiguous loss experienced by caregivers and provides coping strategies.
5. “The Alzheimer’s Action Plan: The Experts’ Guide to the Best Diagnosis and Treatment for Memory Problems” by P. Murali Doraiswamy and Lisa P. Gwyther
   • Summary: This comprehensive guide, written by medical experts, provides valuable information on the diagnosis, treatment, and management of Alzheimer’s disease. It covers various topics, including understanding the early signs of dementia, medical treatments, lifestyle interventions, and support for caregivers. The book empowers families with knowledge, helping them make informed decisions about the care and well-being of their loved ones.

These books gave me tidbits of information, ideas, and hope for the hard days. Not all of them were applicable right when I read them, but they provided information about the changes I might experience. One of the most valuable things I learned through all of my research, is that what worked one day, may not work the next. Each day is about adapting and overcoming challenges.

Inspirational Books For Alzheimer’s Caregivers

This journey of caring for our loved one with Alzheimer’s is hard. Some days we just needed some good ole inspiration. Two of my favorite inspirational books are:

• 1. “Living w/ Alzheimer’s & Other Dementias Book” by Amy Newmark and Angela Timashenka Geiger of the Alzheimer’s Association.
• 2. “Dementia of the Mind But Not of the Heart Book” by Eugene Vezina.

I would love to hear about you and your experiences with Alzheimer’s. I firmly believe that we need a strong community in our journey; sometimes, our journey becomes someone else’s survival guide.